Narcolepsy Navigators Podcast
Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.
Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.
Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."
Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.
Episodes
55 episodes
S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser
Narcolepsy Navigators launches its Medical Series focused on the medical side of narcolepsy and common comorbidities. Host Fred (currently undiagnosed sleep disorder) and co-host Bernadette (narcolepsy type 1) interview Dr. Caitlin Chasser, a f...
Brain Fog and Blurry Words: The Invisible Symptoms Nobody Talks About
In this powerful episode of Narcolepsy Navigators Season 4, we sit down with Amelia, a 28-year-old from London who discovered she had narcolepsy while playing cards on a skiing holiday. What started as uncontrollable laughter turned into a life...
Full Speed Ahead: How Narcolepsy Can't Stop This Race Car Driver
Meet Vincent Arthur - a 21-year-old race car driver from Charlotte, North Carolina, who's proving that narcolepsy type 2 doesn't have to slow you down.In this inspiring episode of Narcolepsy Navigators, Vincent shares his powerful journe...
S4E8:Motherhood, Pregnancy & Narcolepsy with Ashley Blankenship
Can you have a successful pregnancy and thrive as a parent while living with Narcolepsy? This week on Narcolepsy Navigators, Kerly and Liz sit down with Ashley from North Carolina to answer this very question. Diagnosed in 2019 after over a ...
S4E7: Redefining Strength: Javiera's story of Resilience with IH
In this powerful and emotional episode of Narcolepsy Navigators, we travel to South America for the very first time to share the story of Javiera Santamaría, a 28-year-old nurse from Santiago, Chile, living with Idiopathic Hyperso...
S4E6:Building a Life That Works With Your Energy: Cloud’s Journey
In this episode of Narcolepsy Navigators, we sit down with Cloud, a narcolepsy advocate from San Diego living with Narcolepsy Type 1 with cataplexy.After years of struggling with unexplained exhaustion and symptoms that began in adolesce...
.jpg)
Medical Series S1E4:Hot Flashes, Anxiety, Insomnia-The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser
Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser Narcolepsy Navigators launches its Medical Series on narcolepsy and overlooked comorbidities, with host Fred (undiagnosed sleep disorde...
Medical Series S1E3 : Sleep Affects Everything: A Neurologist Breaks It Down”
This Bonus Episode is now available to everyone in celebration of Black History Month!!In our latest episode of Narcolepsy Navigators’ Medical Series, we sit down with Dr. Chris Allen, board-certified pediatric neurologist and ...
Advocacy Series S1E1: Why Narcolepsy Is a Family Diagnosis, Not Just an Individual One
Narcolepsy is often misunderstood, dismissed, and dangerously underdiagnosed — especially in women. In this powerful Advocacy Series episode, we sit down with Dr. Anne-Marie Morse, a neurologist with specialized training in child neurology and ...
Medical Series S1E2: Breaking the Silence with Dr. Jill McGarry: Mental Health Support for Chronic Sleep Disorders
In this episode of Narcolepsy Navigators, hosts Kerly and Sakhara, both living with narcolepsy type one, are joined by Dr. Jill McGarry, a clinical psychologist with 28 years of NHS experience. They delve into the importance of holistic health ...
S1E3:Advocacy Series: Advocacy in Action: A Discussion with Matt Hornsnell on Narcolepsy
In this episode of the Narcolepsy Navigators Podcast, hosts Kerly and Iris introduce their new Advocacy Series aimed at spotlighting changemakers, advocates, and everyday heroes in the field of narcolepsy. They welcome Matt Hornsnell, a sleep a...
S4E5: Running Half Marathons With Narcolepsy: Jayson’s Story From Taiwan
In this powerful international episode of Narcolepsy Navigators, we sit down with Jayson, a PE teacher, endurance runner, and advocate living with Narcolepsy Type 1 with cataplexy in Taiwan.Diagnosed as a teenager after repeate...
S1E2: Advocacy Series: Lifting the Silence: Sleep Disorders Advocacy with Claire Wylds-Wright
In this powerful episode of the Narcolepsy Navigators Podcast, hosts Kerly and Liz kick off a new advocacy-focused series spotlighting changemakers in the sleep disorder community.They’re joined by Claire Wylds Wright, a UK-based advocat...
S4E4: Microsleeps, Hallucinations & Homework: Wendy’s Daily Fight
In this powerful and eye-opening conversation, 18-year-old Wendy shares what life is really like growing up with narcolepsy type 1 with cataplexy. Diagnosed at just 13 years old, Wendy opens up about sleep attacks in class, cataplexy t...
S4 E3: Beyond Narcolepsy: A Journey of Consciousness and Healing
Trigger Content Notice: This episode discusses psychedelics, substance use, religious/spiritual themes, and past trauma. Listener discretion advised.
.png)
S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy
In this episode of NAR Lipsey Navigators, hosted by Kerly and Liz, the spotlight is on Tara, a 27-year-old woman from Maine who has been living with narcolepsy type 1. Tara shares her story, from being misdiagnosed with ADHD and ODD as a child ...
.png)
S4E1: Kleine Levin Syndrome: Parenting Through The Challenges
In this heartfelt episode of Narcolepsy Navigators, Gabrielle and Paul share their family’s journey of raising a child with Kleine Levin Syndrome (KLS), also known as “Sleeping Beauty Syndrome.” Speaking openly about the uncerta...
S3E12 Navigating Narcolepsy with Lucas and Kathy: Insights from Canada
In this episode of Narcolepsy Navigators, hosted by Kerry Bwoga, the founder of Naps for Life, CIC, we sit down with 11-year-old Lucas and his mother Kathy from Toronto, Canada. Lucas shares his experiences living with Type 1 narcolepsy, detail...
S3E11 Navigating Narcolepsy in Namibia Josephine's Journey
In this episode of Narcolepsy Navigators, hosts Kerly Bwoga and Liz are joined by Josephine Niipinge from Namibia, who shares her experience of living with narcolepsy with cataplexy. Diagnosed at the young age of 13, Josephine discusses the cha...
S3E10: Fred: Finding Freedom & Life on the Road with Narcolepsy
This week on Narcolepsy Navigators, Kerly sits down with Fred to explore what it truly means to live with narcolepsy while navigating identity, stigma, and self-acceptance. Fred opens up about the diagnosis journey, the challenges of b...
S3E9 Soheila’s Story: Breaking the Narcolepsy Silence in France
In this inspiring episode of Narcolepsy Navigators, we sit down with Soheila, a 22-year-old from the north of France, to explore what it’s like growing up with narcolepsy. Diagnosed after years of symptoms and medical misunderstandings...
S3E8 Gina: Narcolepsy Through a Parent’s Eyes
When Gina’s six-year-old son began showing unusual sleepiness, tantrums, and sudden collapses, she never imagined it would lead to a diagnosis of narcolepsy with cataplexy. In this heartfelt and insightful conversation, Gina shares the highs an...
S3E7 Hustling with Narcolepsy: Hugh’s Freelance Path
What if managing a condition could open new doors and redefine your career path? Meet Hugh, a talented video technologist from Plymouth, UK who has navigated the unpredictable waters of narcolepsy while making waves in the live entertainment in...
S3E6 - Rebecca's Resilience: Navigating Life with Narcolepsy and ADHD
In this eye-opening episode, we meet Rebecca from North Carolina, who shares her deeply personal and powerful experience living with narcolepsy type 1, cataplexy, ADHD, and a rare condition called gluten ataxia.From the moment she descr...
S3E5 Lisa's Story: From Falling Asleep at Work to Entrepreneur
In this heartfelt episode of Narcolepsy Navigators, Kerly sits down with Lisa Isaac, an inspiring woman living with narcolepsy type 1 and cataplexy in New Zealand. From her days as a sporty teenager needing frequent naps,...
