Narcolepsy Navigators Podcast
Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.
Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.
Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."
Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.
Episodes
63 episodes
Who Decides What a Medical Breakthrough Is Actually Worth?
What is the exact dollar value of staying awake? In this special episode, we dig into a real independent evidence report on Orzeyful (oporexin), a newly FDA-approved drug for narcolepsy type 1 that works completely differently from anything cur...
Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit
It took Michelle Chadwick 20 years to get diagnosed with idiopathic hypersomnia (IH) and when she finally did, she found almost nothing online to help her make sense of it. So she built it herself.In this Advocacy Series episode, ...
YouTube Hates Us and That's Exactly the Point
What happens when you crack open the backend analytics of a podcast built for one of the rarest, most invisible patient communities on earth? In this special episode, we dig into the data behind Narcolepsy Navigators — the downloads, the device...
S5E1: The Night I Carried My Sleeping Son to the ER
What happens when your teenage son stops closing doors, watches the same movie three times in one day without remembering, and disappears from his own life for weeks at a time? In this episode of Narcolepsy Navigators, hosts Kerly and Ross sit ...
S4E12: The Teacher Who Was Sent to Rehab for Being Sick
Imagine falling asleep for two months straight — losing your memory, your personality, even your sense of time. That's life with Kleine-Levin Syndrome (KLS), one of the rarest sleep disorders in the world. In this episode of Narcolepsy Navigato...
S1E5 - Advocacy Series: 27 Years of Narcolepsy: From Rock Bottom to Elite Trainer
What does it look like to build an extraordinary life with narcolepsy — without medication?Welcome to the Narcolepsy Navigators Advocacy Series, where lived experience meets powerful storytelling. This week, Kerly and Liz sit dow...
S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser
Narcolepsy Navigators launches its Medical Series focused on the medical side of narcolepsy and common comorbidities. Host Fred (currently undiagnosed sleep disorder) and co-host Bernadette (narcolepsy type 1) interview Dr. Caitlin Chasser, a f...
S4E11: Blood Is Not Thicker: Boundaries, Trauma, and Narcolepsy
⚠️ Content note: This episode includes discussion of childhood sexual abuse, suicidal ideation, and mental health crisis. Please take care of yourself first.🎙️ EPISODE GUEST: Alejandro Bruner Solas — Program Manager, PWN for PW...
.png)
Advocacy Series S1E4: The App Built From a Father's Love: Nabu AI's Origin Story
Episode Summary:What happens when a brand strategist — someone who's built campaigns for Aerosmith, Lenny Kravitz, Samsung, and Levi's — suddenly finds himself standing in front of a wall of machines keeping his newborn daughter a...
S4E10:Brain Fog and Blurry Words: The Invisible Symptoms Nobody Talks About
In this powerful episode of Narcolepsy Navigators Season 4, we sit down with Amelia, a 28-year-old from London who discovered she had narcolepsy while playing cards on a skiing holiday. What started as uncontrollable laughter turned into a life...
S4E9:Full Speed Ahead: How Narcolepsy Can't Stop This Race Car Driver
Meet Vincent Arthur - a 21-year-old race car driver from Charlotte, North Carolina, who's proving that narcolepsy type 2 doesn't have to slow you down.In this inspiring episode of Narcolepsy Navigators, Vincent shares his powerful journe...
S4E8:Motherhood, Pregnancy & Narcolepsy with Ashley Blankenship
Can you have a successful pregnancy and thrive as a parent while living with Narcolepsy? This week on Narcolepsy Navigators, Kerly and Liz sit down with Ashley from North Carolina to answer this very question. Diagnosed in 2019 after over a ...
S4E7: Redefining Strength: Javiera's story of Resilience with IH
In this powerful and emotional episode of Narcolepsy Navigators, we travel to South America for the very first time to share the story of Javiera Santamaría, a 28-year-old nurse from Santiago, Chile, living with Idiopathic Hyperso...
S4E6:Building a Life That Works With Your Energy: Cloud’s Journey
In this episode of Narcolepsy Navigators, we sit down with Cloud, a narcolepsy advocate from San Diego living with Narcolepsy Type 1 with cataplexy.After years of struggling with unexplained exhaustion and symptoms that began in adolesce...
.jpg)
Medical Series S1E4:Hot Flashes, Anxiety, Insomnia-The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser
Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser Narcolepsy Navigators launches its Medical Series on narcolepsy and overlooked comorbidities, with host Fred (undiagnosed sleep disorde...
Medical Series S1E3 : Sleep Affects Everything: A Neurologist Breaks It Down”
This Bonus Episode is now available to everyone in celebration of Black History Month!!In our latest episode of Narcolepsy Navigators’ Medical Series, we sit down with Dr. Chris Allen, board-certified pediatric neurologist and ...
Advocacy Series S1E1: Why Narcolepsy Is a Family Diagnosis, Not Just an Individual One
Narcolepsy is often misunderstood, dismissed, and dangerously underdiagnosed — especially in women. In this powerful Advocacy Series episode, we sit down with Dr. Anne-Marie Morse, a neurologist with specialized training in child neurology and ...
Medical Series S1E2: Breaking the Silence with Dr. Jill McGarry: Mental Health Support for Chronic Sleep Disorders
In this episode of Narcolepsy Navigators, hosts Kerly and Sakhara, both living with narcolepsy type one, are joined by Dr. Jill McGarry, a clinical psychologist with 28 years of NHS experience. They delve into the importance of holistic health ...
S1E3:Advocacy Series: Advocacy in Action: A Discussion with Matt Hornsnell on Narcolepsy
In this episode of the Narcolepsy Navigators Podcast, hosts Kerly and Iris introduce their new Advocacy Series aimed at spotlighting changemakers, advocates, and everyday heroes in the field of narcolepsy. They welcome Matt Hornsnell, a sleep a...
S4E5: Running Half Marathons With Narcolepsy: Jayson’s Story From Taiwan
In this powerful international episode of Narcolepsy Navigators, we sit down with Jayson, a PE teacher, endurance runner, and advocate living with Narcolepsy Type 1 with cataplexy in Taiwan.Diagnosed as a teenager after repeate...
S1E2: Advocacy Series: Lifting the Silence: Sleep Disorders Advocacy with Claire Wylds-Wright
In this powerful episode of the Narcolepsy Navigators Podcast, hosts Kerly and Liz kick off a new advocacy-focused series spotlighting changemakers in the sleep disorder community.They’re joined by Claire Wylds Wright, a UK-based advocat...
S4E4: Microsleeps, Hallucinations & Homework: Wendy’s Daily Fight
In this powerful and eye-opening conversation, 18-year-old Wendy shares what life is really like growing up with narcolepsy type 1 with cataplexy. Diagnosed at just 13 years old, Wendy opens up about sleep attacks in class, cataplexy t...
S4 E3: Beyond Narcolepsy: A Journey of Consciousness and Healing
Trigger Content Notice: This episode discusses psychedelics, substance use, religious/spiritual themes, and past trauma. Listener discretion advised.
.png)
S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy
In this episode of NAR Lipsey Navigators, hosted by Kerly and Liz, the spotlight is on Tara, a 27-year-old woman from Maine who has been living with narcolepsy type 1. Tara shares her story, from being misdiagnosed with ADHD and ODD as a child ...
.png)
S4E1: Kleine Levin Syndrome: Parenting Through The Challenges
In this heartfelt episode of Narcolepsy Navigators, Gabrielle and Paul share their family’s journey of raising a child with Kleine Levin Syndrome (KLS), also known as “Sleeping Beauty Syndrome.” Speaking openly about the uncerta...
