S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy Artwork

Narcolepsy Navigators Podcast

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.

Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.

Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."

Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

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Narcolepsy Navigators Podcast

S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy

October 09, 2025 • Kerly Bwoga • Season 4 • Episode 2

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In this episode of NAR Lipsey Navigators, hosted by Kerly and Liz, the spotlight is on Tara, a 27-year-old woman from Maine who has been living with narcolepsy type 1. Tara shares her story, from being misdiagnosed with ADHD and ODD as a child to finally receiving the correct diagnosis at 22. She discusses her struggles with maintaining jobs, her journey through various treatments, and the significant lifestyle changes she implemented after her diagnosis. Tara's advocacy work, including her role as a patient ambassador for WSG and her social media presence, underscores her commitment to raising awareness about narcolepsy. The episode also delves into the challenges and triumphs of living with a chronic sleep disorder, offering a poignant look at resilience and self-advocacy.

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Link: https://www.napsforlife.com/podcast/episode/81863df7/s4e2-firefighter-emt-advocate-tara-oconnor-redefines-whats-possible-with-narcolepsy

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***If you find these symptoms relatable, please seek medical advice.***