S3E12 Navigating Narcolepsy with Lucas and Kathy: Insights from Canada Artwork

Narcolepsy Navigators Podcast

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.

Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.

Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."

Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

All Episodes

Narcolepsy Navigators Podcast

S3E12 Navigating Narcolepsy with Lucas and Kathy: Insights from Canada

September 22, 2025 • Kerly Bwoga • Season 3 • Episode 12

Leave a review!

In this episode of Narcolepsy Navigators, hosted by Kerry Bwoga, the founder of Naps for Life, CIC, we sit down with 11-year-old Lucas and his mother Kathy from Toronto, Canada. Lucas shares his experiences living with Type 1 narcolepsy, detailing his daily struggles with sleepiness, cataplexy, and how he manages to stay active. Kathy provides insights into the challenges of navigating the Canadian healthcare system, advocating for better support and understanding for pediatric narcolepsy. The episode also highlights the importance of community support and awareness in managing sleep disorders. Additionally, Kerry announces the launch of their new Patreon and merch store to help support their advocacy efforts.

Highlights:

02:45 Lucas's Narcolepsy Journey

09:06 Sleep Tests and Diagnosis

12:04 Support Systems and Coping Strategies

19:37 Parental Perspective on Narcolepsy

29:01 Challenges with Medical Support

32:15 Iron Deficiency and Its Impact

48:30 Raising Awareness and Seeking Support

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com