
Narcolepsy Navigators Podcast
Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.
Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.
Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."
Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.
Narcolepsy Navigators Podcast
S3E3 Crashing Into a Diagnosis: Meg’s Story
In this raw and deeply moving episode of Narcolepsy Navigators, we meet Meg—a 36-year-old adoptee, student, and mental health advocate navigating life with narcolepsy type 1, CBID, Behçet’s syndrome, and bipolar disorder. Meg shares the emotional rollercoaster that led to her diagnosis after a devastating car crash, including the haunting vivid dreams, overwhelming fatigue, and misunderstood cataplexy that shaped her early adulthood.
From managing multiple chronic conditions to challenging cultural expectations as a Korean-American adoptee raised in a "tiger mom" household, Meg reflects on identity, resilience, and finding connection through vulnerability. Her candid reflections on depression, dating with chronic illness, and the harsh realities of invisible disabilities will resonate with anyone who’s ever felt like their body betrayed them.
🔹 Chapters:
00:00 – Introduction & Background
04:00 – The Car Crash That Changed Everything
08:00 – Diagnosis: Relief Meets Devastation
12:00 – Comorbidities: Bipolar, CBID, Behçet’s
21:00 – Sleep Struggles, Advocacy & Academic Life
37:00 – Parenting, Future Plans, and Honest Reflections
53:00 – “Would You Press the Red Button?”
This is a powerful reminder that even when life reroutes us, it doesn’t have to end the journey
Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.
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***If you find these symptoms relatable, please seek medical advice.***