
Narcolepsy Navigators Podcast
Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.
Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.
Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."
Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.
Narcolepsy Navigators Podcast
S1E10 Sara: Dreams Interrupted
Experience the raw and transformative journey of Sara Duncan, a courageous 29-year-old from Oregon, as she navigates the complexities of life with narcolepsy. From her pre-med college days filled with relentless fatigue to the frustrating misdiagnoses that dismissed her symptoms as mere anxiety and depression, Sarah's story highlights the often-overlooked struggles of those living with this condition. This episode of Narcolepsy Navigators sheds light on the emotional and physical challenges Sarah faced, emphasizing the critical role of self-advocacy in the pursuit of proper medical recognition and treatment.
Discover the profound impact of Sara’s narcolepsy diagnosis on her aspirations of becoming a doctor. Working in a beloved hospital, she encountered the harsh realities of America's medical system, often leaving patients to fend for themselves. Sara's narrative not only underscores the systemic barriers in medical education and practice but also explores the broader challenges disabled individuals face in both educational and professional settings. Learn about Sara's difficult decisions and the alternative paths she pursued to create a fulfilling life despite the limitations imposed by her condition.
Explore the nuanced interplay between narcolepsy, ADHD, and the endocrine system as Sara details her journey towards managing her symptoms. From the significance of simple accommodations to the emotional liberation of embracing her identity, Sara's experience is a testament to resilience and self-discovery. This episode delves into the societal pressures and stigmatization around disabilities, emphasizing the importance of embracing one's identity and advocating for necessary resources.
Join us for an eye-opening conversation that challenges societal norms and celebrates the strength found in vulnerability.
CHAPTER TIMESTAMPS
(00:10) Navigating Life With Narcolepsy
(04:30) Misdiagnosis and Medication Pressure
(11:23) Navigating Medical School With Narcolepsy
(17:34) Navigating Accommodations in Medical School
(20:18) Navigating Disability in Medical Education
(31:31) Exploring Sleep-Inducing Aromatherapy Tea
(36:04) Narcolepsy and Body Regulation
(39:05) Exploring Asexuality and Disability in Relationships
(43:39) Evolution of Disability Identity
(51:22) Reevaluating Disability and Support
(56:33) Understanding Disabling Labelling and Ableism
Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.
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Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.
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***If you find these symptoms relatable, please seek medical advice.***