S2E1 Narcolepsy’s Hidden Toll: Tamby’s Journey Artwork

Narcolepsy Navigators Podcast

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.

Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.

Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."

Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

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Narcolepsy Navigators Podcast

S2E1 Narcolepsy’s Hidden Toll: Tamby’s Journey

October 28, 2024 • Kerly Bwoga • Season 2 • Episode 1

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Welcome back to Narcolepsy Navigators for an eye-opening Season Two episode that dives into Tamby's journey with narcolepsy. In this heartfelt conversation, Tamby shares the raw reality of living with a misunderstood condition, navigating cultural misconceptions, and dealing with a whirlwind of challenges, from hallucinations to unexpected cataplexy attacks. She recounts memorable moments, like when family members tried to ward off “evil spirits” by breaking eggs over her head, and reveals how even a Seventh-day Adventist boarding school, where she hoped for understanding, fell short.

This episode goes deeper, uncovering the well-intentioned, if unconventional, interventions from teachers and family, and Tamby’s resilience through years of misdiagnoses and social stigma. Together, we explore why advocacy and accurate portrayals in media matter, and how support systems shape the lives of people with narcolepsy.

Join us for Tamby’s incredible story and a closer look at the strength, humour, and humanity needed to live boldly with narcolepsy.

Chapter Timestamps

(00:10) Life With Narcolepsy
(09:17) Struggles With Sleep and School
(21:24) Navigating School and Misdiagnoses
(27:36) Navigating Narcolepsy and Misunderstanding
(40:38) Challenges of Living With Narcolepsy
(51:28) Living With Narcolepsy and Advocacy

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