S2E2 Awake in Colour: Angela’s Creative Outlet for Narcolepsy Artwork

Narcolepsy Navigators Podcast

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.

Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.

Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."

Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

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Narcolepsy Navigators Podcast

S2E2 Awake in Colour: Angela’s Creative Outlet for Narcolepsy

November 17, 2024 • Kerly Bwoga • Season 2 • Episode 2

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In this compelling episode of Narcolepsy Navigators, we meet Angela, an inspiring artist living with narcolepsy and cataplexy. Through her candid storytelling, Angela reveals how creativity and support systems have become her sanctuary amidst the challenges of living with unpredictable sleep disorders.

What You’ll Learn:

How Angela uses bead art as a therapeutic escape from medical trauma and daily challenges.
The role of emotional support animals, including Angela’s beloved rat, Didamus, in fostering mental well-being.
The complexities of living with cataplexy, including sudden muscle weakness, public misconceptions, and the proactive steps Angela takes to educate others with resources like pamphlets for healthcare professionals.
Why Angela turns to horror and sci-fi films as a coping strategy for managing cataplexy triggers and the fascinating intersection of lucid dreaming with her condition.

Highlights:

Angela’s resilience in turning challenges into triumphs, including gaining international recognition for her art and accolades from the drag community.
The vital role of supportive caregivers and networks in helping those with narcolepsy navigate life’s hurdles.
Insights into the need for greater empathy, awareness, and accurate representation of narcolepsy and cataplexy in society and media.

Join us as Angela shares her journey of creativity, advocacy, and resilience, proving that even in the face of immense challenges, art and community can be transformative.

Listen Now: Discover how Angela’s story sheds light on the realities of living with invisible disabilities and the profound impact of art and support on mental health.

Chapter Timestamps

(00:10) Navigating Life With Narcolepsy and Art
(13:54) Living With Severe Cataplexy Challenges
(24:07) Artistic Escape and Lucid Dreaming
(33:44) Navigating Life Through Art and Narcolepsy

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