
Narcolepsy Navigators Podcast
Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.
Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.
Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."
Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.
Narcolepsy Navigators Podcast
Medical Series S1E1: Let’s Face It: Emma’s Truth About Sleep Apnea
What happens when exhaustion is brushed off as “just stress” or “just pregnancy”?
In this moving episode of Narcolepsy Navigators, Emma Cooksey—host, author, and now Sleep Apnea Program Manager at Project Sleep—shares her long, harrowing journey with undiagnosed obstructive sleep apnea (OSA). After years of misdiagnosis, Emma’s wake-up call came behind the wheel—when she fell asleep while driving pregnant.
Emma dives into her diagnosis story, the daily challenges of adapting to CPAP therapy, and her mission to reshape how sleep apnea is seen and treated—especially for women, younger adults, and people who don’t fit the “classic” profile.
Now leading the Sleep Apnea Squad, Emma is on a mission to raise awareness with Project Sleep’s bold campaign, “Sleep Apnea: Let’s Face It”—a movement designed to highlight real people living with sleep apnea and crush outdated stereotypes.
Highlights:
[08:52] Falling asleep while driving: Emma’s turning point
[16:20] What CPAP therapy doesn’t tell you
[24:50] “Let’s Face It” and sleep apnea stereotypes
[35:47] The deadly risks of going untreated
Bio:
Emma Cooksey is an award-winning patient advocate. She was diagnosed with obstructive sleep apnea at the age of 30, after more than a decade of unexplained health issues. In 2020, Emma launched a weekly podcast, “Sleep Apnea Stories” to break down stereotypes of sleep apnea while also raising awareness of symptoms and treatment options.
In her current role, as Sleep Apnea Program Manager, Emma runs Project Sleep’s Sleep Apnea Education and Awareness Program. Through this program, she develops new awareness and educational initiatives, to empower people with sleep apnea to seek diagnosis, support, and care. Emma was born and raised in Scotland, holds a Law degree from Aberdeen University, and now lives in Florida with her husband Jason and their two girls.
Tune in for a conversation that’s educational, emotional—a
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***If you find these symptoms relatable, please seek medical advice.***