Narcolepsy Navigators Podcast
Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.
Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.
Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."
Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.
Narcolepsy Navigators Podcast
S2E12 Jacquie & IH: The Reality Beyond Just ‘Tired’
Summary
️ What if it took a decade to get answers?
In this episode of Narcolepsy Navigators, we sit down with Jacquie, a 25-year-old scientist from Texas, to discuss her journey with Idiopathic Hypersomnia (IH)—a sleep disorder that took 10 years to diagnose. From struggling through high school exhaustion to navigating university, lab work, and daily life, Jacquie shares how she advocates for herself and others while juggling a demanding scientific career.
Key Takeaways:
✔️ The challenges of getting diagnosed with a rare sleep disorder
✔️ What it’s like managing IH in a high-pressure work environment
✔️ The mental toll of constantly feeling exhausted
✔️ Why raising awareness is crucial for funding future research
For Jacquie, science and advocacy go hand in hand. She refuses to let her condition define her future and is using her voice to create change.
Listen now!
Chapters
(00:00) Navigating Life With Sleep Disorders
(12:58) Navigating Life With Invisible Disabilities
(19:41) Accidental Journey Into Science
(22:43) Navigating Career Aspirations With IH
(26:26) Advocating for Research on Sleep Disorders
(31:41) Navigating and Advocating for Invisible Disabilities
(39:45) Navigating Hope in Advers
Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.
Follow and support Narcolepsy Navigators:
www.napsforlife.com
Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast
***If you find these symptoms relatable, please seek medical advice.***
