Narcolepsy Navigators Podcast

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.

Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.

Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."

Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

Podcasting since 2023 • 69 episodes

Narcolepsy Navigators Podcast

Latest Episodes

S5E7: Sleep health tech consultant and paediatric sleep consultant for a leading London NHS trust.

Dr. Desaline Joseph is a sleep physician, circadian scientist, and health tech consultant. Within the NHS, she helps look after the largest pediatric neurology sleep lab in the UK , and outside it she advises wearable and digital health...

November 04, 2026 • Season 5 • Episode 7 • 50:52

S5E6: Pray It Away? Growing Up With Narcolepsy and Being Misunderstood

Milah was six when narcolepsy began. She remembers a very energetic, curious child, and then a child who slept so much she spent school days in the medical room. In this episode, hosts Kerly and Fred talk with Milah about how she was diagno...

October 29, 2026 • Season 5 • Episode 6 • 52:26

S5E5:We Think Outside the Box": Narcolepsy, ADHD, and Being Underestimated

Kylie Dennis O'Sullivan was diagnosed with narcolepsy type 1 at 12 years old — after years of being told by doctors that she was "just fat and lazy." In this Black History Month UK special, Kylie joins hosts Kerly and Sakhara to talk about grow...

October 06, 2026 • Season 5 • Episode 5 • 54:21

S5E4: Why We Just Want to Be Trusted: Narcolepsy, Careers, and Burnout

Liz is a speech and language therapist. Christine is a former chartered accountant. Both were diagnosed with narcolepsy type 1 — and both have had to fight, again and again, for accommodations they were legally entitled to.In this episo...

September 29, 2026 • Season 5 • Episode 4 • 57:10

S5E3: She Falls Asleep, She Can't Stop Ticcing — Meet Two Best Friends

Mel has narcolepsy without cataplexy.Jeanna has Tourette syndrome. They met in a Walmart parking lot, went viral for a motorcycle ride the internet still argues about, and somehow became each other's safest place — through a cancer relapse,...

September 22, 2026 • Season 5 • Episode 3 • 1:17:37